Thursday, December 10, 2009

*SURGERY TOMORROW-PRAYERS PLEASE*

This little Cutie is our Kyan. He is having his ear tubes put in tomorrow at 10am EST. Please keep him in your prayers. We have a few specific things we would like you to pray for.

1. Please pray that Kyan comes through the surgery without problem.

2. Pray for his anxiety (and ours) as he goes through this procedure. I am sure he will be scared by new surroundings, new people and of course the procedure itself.

3. Please pray that these tubes help his ears and HELP WITH HIS AGGRESSION. We are at the end of our rope with hitting, biting, kicking, screaming, and throwing things.

4. PLEASE pray that Kyan has no adverse effects from the anesthesia. MANY kids with Autism regress for months following anesthesia. Kynsie did when she had a cyst removed from her face a few years ago, so I am VERY concerned about Kyan. The last thing he needs is a regression.

Thank you in advance for your prayers. We will be glad to get tomorrow behind us.

Tuesday, December 08, 2009

snow, tools, and cookies!

so we got a new camera and i have been taking some pictures with it...and sunny has to. here are some ...

kyan (look at his eyes!)
braylen eating an apple
kynsie at the "puter chair" (does she not look like she's up to something?)

so tonight sunny decided to make some cookies and enlisted the help of some little helpers! see below...

braylen putting sprinkles on the cookies...
more sprinkles...


kyan stirring the dough

kynsie helping stir the dough...

we have despirately needed some organizing shelves. we found one at target and the kiddos wanted to help me put it together. here is the finished product and also pictures of my "helpers"







well, we had a surprise snow last saturday and the kiddos loved it!


catching snowflakes!







well, that's all for now. kyan and kynsie have their christmas program at school tomorrow and we will have more pictures and hopefully some video of it as well.

Monday, December 07, 2009

Quick Prayer Request

I called the ENT for cancellations and there weren't any. I explained our situation and asked if we could possibly see another doc or nurse practioner. Receptionist took notes and promised to talk to doctor and let us know. They called back at 10 minutes to 1pm and asked if we could have Kyan there by 1:20pm. I explained that that they would be late, but we could work it out. So in a flash Barbara dressed and loaded up kids and brought Kynsie and Braylen by and is now at ENT's office.

Praying for answers and wisdom for Dr. Belmont.

thanks in advance

***UPDATE***
Kyan is scheduled for surgery for ear tubes on Friday. We won't know the time until Thursday evening, but please say prayers for his health and safety, and that this helps him.

Sunday, December 06, 2009

Hiding Under the Bed

Well, friends, I don't have those pictures uploaded and I don't have anything witty to say. It's really rough around here right now. Kyan spent Friday night with Barbara in hopes that some time away would chill him out. He was home from Barbara's less than 20 minutes yesterday when Brandon sent me the following text message (I was at work): "Been home 20 minutes- 4 biting attempts, 8 hitting attempts, 6 kicking attempts, 3 times throwing things".

*Sigh* what do you do with that?? I believe that there is something physiologically wrong with him. However, I fear that he is just bad. I pray that is not the case. We are not soft on him, but seriously nothing works. Timeouts, spankings, time in his room, little picture signs that tell him not to hit, holding his arms, popping his mouth, holding him tight with deep pressure, extra supplements to calm him, giving him extra positive attention, ignoring bad behavior, redirecting, removing certain foods from his diet to reduce aggression, taking toys away, yelling, teaching 'gentle touch', affirming positive hugs, etc., cheering for him when he is not screaming, hitting kicking, saying "Kyan, I like the way you are doing XYZ" ... when he does something good, using a weighted blanket for deep pressure, ....none of it even makes a dent.

If for some reason you doubt that we are disciplinarians, check out our other 2 kids. They have their moments, but generally they behave well, even in public. Not Kyan. As I sat in Church today, I have never felt more like a failure. He can be so sweet on occasion--when he is by himself like an only child--but most of the time, Kyan is incredibly unpleasant to be around. This is what we have created. I feel like a failure because I genuinely know that I have done everything possible to keep him from turning into a sociopath, and none of it...NONE OF IT... is helping even a little.

If I could wave a white flag, I would. Our pastor talked about peace today. He told a story of a little boy hiding under his bed, and asked us if we don't all have fears of our own that make us want to crawl under the bed too. I have to say, if I could get away with it, that is EXACTLY what I feel like doing. Hiding away from the world and just shutting it out. I just can't believe I have met a child whose behavior I can not shape, or change. I can't believe my child, MY CHILD acts this way, all of the time. Naive? Maybe, but what will his/our future look like? We took Kynsie and Braylen to church today and when I picked them up the regular nursery worker said "They are just so sweet". I have NEVER heard anything like that from her or anyone else at church regarding our children until today, when Kyan was gone. :(

Part of the reason I am so exasperated is because this isn't just a phase. We didn't just have a bad day with a promise or even possibility that tomorrow will be better. No, this is cumulative. This is 2+ years of day-in, day-out with Kyan with VERY few good days. This is ruined play dates, outings and adventures that should have been fun but were turned upside down by a miserable child. This is being kicked and hit because I won't let my child sit in feces all day. This is the smallest request being met with a screaming "NO!!" and throwing something or hitting me...almost every day, for over 2 years. There have been a few brief periods where he chilled out and we have NO CLUE what was going right that isn't now.

So on top of fear, worry, frustration, exhaustion, and yes, a little embarrassment, I have monumental guilt because I resent all of this so much. I don't like to be around my own child. Yes. I just typed that. And I HATE that I feel that way, but it is true. I LOVE him down to my bones, but he sucks the life out of me. I am noit patient anymore. I am just done. DONE. DONE. DONE. But I can't be. That's not a choice (as I say to Kyan when he is screaming for this or that). So what do I do??? Anyone? Beuller?? Beuller?

I want Kyan to be here. I want him to be home and with us and for the house to be peaceful, but it just doesn't happen that way. The whole time he was gone, I missed him...felt like something was missing, but there was peace in our home. Kynsie and Braylen played nicely and there wasn't as much as a cross word between them. No hitting. No kicking. No screaming or biting. Just peace.

So, I want to crawl under my bed and hide from all of this because there simply isn't an easy, and perhaps not even a correct answer. God knows I am looking for it. I am not equipped to do this, that is painfully clear. Maybe God is trying to teach me humility. Today I felt about as humble as I could sitting in church. Lesson learned.

I have always believed that at some point it WILL get better, easier even. I am now suspicious that it might NOT get better. That friends, is a place of hopelessness. I don't want to live like this forever. I am TRYING everything I know to do to help our son, and all of it seems in vain. Maybe this is just as good as it gets for us. GOD---if you are still listening, please don't let that be so.


To everyone else, if you got this far through my drivel. We'd appreciate your prayers. Don't know what to ask you to pray for. I am out of answers. We would appreciate the prayers though. We ALL need some relief.

Saturday, December 05, 2009

H1N1 Vaccine Clinic! SERIOUSLY???

I received a note from Kynsie & Kyan's school that they are holding an 'H1N1 vaccine clinic' at their school on Monday. SO--guess who won't be going to school Monday? That's right. I could sign a form saying they shouldn't get the vaccine, and I do believe my wishes would be honored, but on the off chance that they weren't, I would hate to have to kill someone. I mean really, do you want to see me on the evening news? No? Me either. I think we can all agree that I would cause bodily harm to any person that gave my child a vaccine, so it is best for all parties involved that my kids stay home on Monday. PLUS--those stupid vaccines will cause the children who get them to shed the virus, essentially making them contagious with the virus. So my kids would be SUPER exposed to H1N1. Nice, huh?

Well, here's the biggest irony of all. This school is for medically and developmentally challenged children and for other children who are high risk for one reason or another--speech delays, at risk family, etc. So the majority of the children at the school are fragile medically or developmentally, if not both. And what is the brilliant Knox County Health Dept. going to do?? Load them up with toxins and a virus with a vaccine that is controversial on it's best day. Personally I think it is INCREDIBLY irresponsible, SHAMEFUL, and medically reprehensible to vaccinate the most vulnerable among us. I called the Knox County Health Department to tell them just that. I have yet to speak to the Head Nurse who is in charge of this vaccination program. I'm not holding my breath on that one.

If given the opportunity, I will share with her just how irresponsible and shameful I think it is to put these fragile children at further risk. I will also encourage her to share with her superiors that they might want to look into legal representation for WHEN not IF a child from our school has a dangerous reaction to this ridiculous vaccine. I may call her back and just leave a LOOOONNG message. At least she will hear it...part of it.*Whew* ok. Got that off my chest.


links worth checking out: